Did you think I was avoiding you?

Image

In the grocery store?  I was.  I have been doing okay with most things.  Taking care of the usual necessary arrangements. Switching accounts and bills over to my own name.  Making arrangements to have all of the things done that I never had to worry about before.  I can have lunch with friends and talk about what happened. No problem.  Lately, though, if I see someone I know in a store I want to hide. I try not to catch their eye.  I turn down an aisle whether I need anything in it or not.  There are two kinds of people I see at the grocery store.   The ones I haven’t seen since the funeral and the ones I haven’t seen or heard from at all. As when my sister died, this is summer vacation. People are away. I really don’t want to be explaining what happened in front of the frozen peas or breaking down in the wine section (that just looks bad on so many levels). So if I give you a small wave and then turn away, please don’t be offended. And please don’t go out of your way to catch up with me in Dairy. Neither one of us will leave there feeling very good.  Instead of socializing I walk through the store like a ghost, picking up this and that, putting most of it back.  I buy tons of vegetables and fresh fruit and days later throw most of them away. I pick up packages of snack foods he liked to take to work and then remember that I just cleared all that out of the house and it all goes back. Cereal?  I don’t eat it, yet there are a 1/2 dozen boxes in my cupboard at the moment.

Yesterday was the one month mark.  We (the girls and I and my mother) went out for lunch and a movie.  We had a nice time. The movie was good. Exciting even.  I had a lump in my throat through most of it.  He would have liked it. He might have even stayed awake for the whole thing.  I don’t know why it made me sad.  I didn’t even particularly like going to the movies with him.  Because he always crowded me .. you know the type, taking up all the arm space on both sides.. and then would fall asleep.. only to wake up at various points during the movie wanting to know what happened.  He did the same thing when we watched movies at home. We had this routine.. me:  “are you up for a movie?  can you stay awake?”  him:  “sure”.. me:  “well, I know you’re tired and I don’t mind waiting until the weekend” him:  “just put it on”  him (5 minutes later): snoring.  I would spend the first half of the movie nudging him and the 2nd half hoping he wouldn’t wake up and start asking what happened. And after the movie ended he would get his second wind and spend hours on Facebook posting obscure music videos.  Nevertheless, we had a fairly long list of shows that we watched together, usually a full season at a time through Netflix. I guess all couples have their thing.. marathons of Sons of Anarchy, Breaking Bad, Shameless, Boardwalk Empire.. was ours. Interestingly, he could stay awake though all of those, but if I put on Weeds (at his request) he would sleep through most of it.

I can talk about how he died.  I can talk about what to do with his things, should I sell this? donate that? save it for the kids?  Those conversations feel normal. Doing groceries, making dinner, choosing what to watch on TV..those are the things that can have me reaching for an Ativan.   He loved to eat and I loved to cook.  We had an unwritten rule as a family, once the kids were old enough.. everyone pretty much fended for themselves for breakfast and lunch, but dinner was eaten at the table as a family every night.  Even the grown up kids were expected to be there if they were living here or visiting.  And we would hold dinner until they showed up.  We didn’t eat in front of the TV.  Over the past few years, if he was watching a game or we were just relaxing I would sometimes say.. “do you just want to eat in the living room?” .. it became a habit.. maybe once a week, but the majority of the time we still ate dinner as a family at the table.. even if it was just us two.  The table now holds a small stack of magazines (I guess I should cancel those subscriptions) that I have no interest in but can’t throw away, my ironing board and iron, a vegetable steamer and assorted other flotsam and jetsam of my life at the moment.

When my sister passed away we would talk about what the loss meant to each one of us, but the one I could hardly talk about without breaking down was her live in boyfriend.  She died in their bed in the home they had made together.  I couldn’t stand the thought of him being there alone, returning home to the emptiness. He had lived in the house alone before he met her but she had definitely made her mark on it.  I could not imagine what he was going through. It felt so much worse than what the rest of us were.  And now.. less than a year later I am in the same exact position (Dear Irony, I am no longer your biggest fan).  But strangely, I feel more anxious when I am away from home than when I’m here.  I do force myself to leave every day for one errand or another.  Baby steps. One foot in front of the other. Apparently that’s how you move forward.

A friend asked me the other day if I was mad at God.  I said I didn’t dare be mad at Him, I would be afraid of what He had in store for me next. We both laughed. I wasn’t kidding.

Stolen from Facebook

Stolen from Facebook

Navigating a new reality

lord__again_i_bring_you_my_broken_heart_by_mistress_daydream-d5g0yoi

I’ve been pretty silent on the blogosphere. I’ve reblogged a few gems from some of the smart ladies that I follow, but otherwise have not had a lot to say. Mainly because life was becoming blissfully normal and really, who wants to read about the day to day musings of a 50 year old woman?  Nothing to see here folks.   I had planned to blog on the one year anniversary of my sister’s death.  That is coming up  on July 10.  Actually I planned to reblog the post I made about 10 days after she passed.  It’s not like anything has changed in that regard. She is still gone and we still miss her.   I was contemplating an update when I see my oncologist in July.  Truthfully I don’t expect anything new to come from that visit so unless something horrifying or hilarious happened on the way to the center it would be a pretty boring entry.

What I never in my wildest imaginings expected to be blogging about is the unexpected death of my husband.  On 4/29/13 we welcomed his new grandson in Texas.  On 6/1/13 we celebrated our 28th wedding anniversary with a trip to the coast that included eating lobster and looking for “treasure” in flea markets and antique shops. I looked for things to sell in my ebay business. He looked for vinyl and other collectibles that he could display in his “man cave”.  On 6/5/13 I spent the day setting up a charity lawn sale and when we both arrived home at the same time I told him I was too tired to cook and asked him to pick up sandwiches.  He did and we had a quiet evening.  He called a close friend and talked for a time, then called his son.  About an hour and a half earlier than he normally went to bed, he announced he was “freezing” and was visibly shivering.  I felt his forehead.. no fever. He was not sweating.  He had no other symptoms.  We both went to bed and slept normally. The next morning we were planning to visit our daughter in law before she flew home (she’d been here for a funeral) so he had the day off. We both slept a little later than normal.  When I got up he was in his recliner under two blankets. I asked he if was still cold and he said no, just achy and really tired.  While I made coffee he got the paper.  He didn’t touch his coffee or the paper and at one point just got up and went back to the bedroom. I asked if he’d gone back to bed and he said “for just a bit”.  I checked once, he was on his side facing the wall.  Fifteen minutes later I heard what I thought was loud snoring and went in. He was now flat on his back. I could not rouse him. I could not move him.  He appeared to be choking so I called 911.  While on the phone, he stopped breathing.  He was gone. Just like that. The EMTs were there in minutes and worked for over 45 minutes.  On 6/6/13 @ 8:26 a.m. my life changed forever.

Within hours my house was full of family.  My kids stayed with me for  more than 2 weeks (leaving in stages).   I had some wonderful quality time with the new baby.  I hated to see them all go, but my new reality involves living alone and doing for myself. I would love to hide under the covers or sit back helplessly and let others do for me, but that just prolongs the inevitable.

On the practical side there are decisions to be made, bills to pay, I had to buy health insurance for the first time in my adult life as we were always covered under his work plan (thank God I’m through with the expensive part of cancer treatment). I’m looking for work because even though my small business is making money, working alone is very isolating.

I guess I do have plenty to say after all. Huh, who knew?  Those of you who followed my journey through breast cancer are invited to follow my new journey through early widowhood.  I promise it won’t be all doom and gloom.  As is typical in our family there have been some hilarious moments that have you laughing/crying at the same time.

Remind me to tell  you about the financial institution that had me convinced someone had stolen my husband’s identity, had named names and was insisting I file a police report.  Only to find out it was their mistake after all (which I had been telling them for 2 days).  That’s a long story for another day.

They say God doesn’t give you more than you can handle.  He can stop any time now. I’m not the bad ass He makes me out to be.

In spite of it all, I remain mainelyhopeful.

Hypochondria.. another fun side effect of cancer

hypochondriac

So, I’m done with cancer, but is cancer done with me?  On Thanksgiving night I pulled an abdominal muscle.  The pain went all the way through to my back. I knew I pulled a muscle. I felt it.   For the next 10 days I would feel the pain if I stretched or turned the wrong way. It would sometimes be worse in my upper abdomen, sometimes in my back or rib cage.  It would stop me in my tracks at times and a deep breath could bring me to tears. There’s not a whole lot that can be done for a pulled muscle so I never tried to get in to see my doctor.  I just suffered silently (ha!!).    Okay in the interest of full disclosure I may or may not have mentioned to my family that I should probably go to the ER, if I screamed suddenly they should just ignore me, and that I likely had a few cracked ribs, but I’d probably be okay.   They got off easy… I was treating myself to much more dire internal commentary.  What was that tearing feeling?  An abdominal aneurysm?  Wait.. is my liver enlarged?  If I do have a cracked rib.. why?  Bone mets?  Am I being paranoid?  Wouldn’t a brain lesion cause paranoia?  I also was sure I had gall bladder disease and maybe biliary colic (what’s biliary colic?.. I have no idea but it sounds impressive).

As of  today, I think I will probably pull through. I can only feel the pain if I force it.  I’m sure I’ll pull another muscle with all these crazy contortions I’m putting myself through to see if I can reproduce the pain proving it was indeed a pulled muscle versus needing immediate surgery for some kind of internal injury.

p.s.. hypochondria is a recognized medical condition.  So I’m only a little crazy.

hypochondriac-i3

Waiting to exhale

I finally got the call back from my mammogram. This wasn’t just any mammogram.. it was the first one post diagnosis.  I don’t recall ever having to wait more than a week for results before.  Usually my doctor would call in a day or two to say all is well (or not..in the case of last year’s) and then I would get the generic pink form letter from radiology confirming.  I knew that my doctor(s) got the results a week ago. Still, I hadn’t heard a peep from anyone.  I called the cancer center yesterday and left a message which was finally returned this morning.  All clear.  I was too happy to ask if it was common practice to make a breast cancer patient wait for results of her mammogram.  I know they are read the day of the test or the next day at the very latest.

No one on my team of medical experts has used  the words “cancer free” yet. Or even “no evidence of disease”.   Since these are the same people who had no problem making me hold my breath for over a week I’m going to assume they just don’t see the value in putting cancer patient’s minds at ease, so I’ll say it. Cancer Free!  

Just a quick post from sunny Texas!

Here on vacation with the boy and his missus who are awesome hosts as always.   The weather has been gorgeous! I was worried that my chemopause would make the heat unbearable but that hasn’t been the case.  It was only really hot one day and by evening was beautiful.  Apparently there is a Nor’Easter brewing at home. So sorry to be missing it.

I dutifully wore the compression sleeve while flying and had no problems at all. Maybe I wouldn’t have anyway, but why risk it? I’ll wear it on the flight home as well.

I am now able to cross one more thing off my bucket list. I got my tattoo on 6th Street in Austin on Monday.  I used a very scientific method to choose the parlor/artist. I picked the building with the friendliest looking storefront.  It was amazingly clean and bright.  I’m not sure what I expected but I felt like the whole process was more sterile than my medical treatment at times. The artist, David, was covered in tattoos and piercings (of course) as was the rest of the staff.  He was great, explaining every step, offering to stop if it hurt too much, and fast!  He sent me off with better skin care instructions than my radiation oncologist. Go figure! Just goes to show you should never judge someone by their choice of body art.  If you are ever in the Austin area, looking to get some ink (doesn’t that sound badass?) visit Affinity Tattoo and ask for David.  He won’t even question the fact that you are a 50 year old conservatively dressed woman with her husband and son along for support getting your first tat. No judgment.

p.s. it really didn’t hurt. It didn’t feel good, mind you, but I wouldn’t call it painful.  Maybe biopsies and endless needle sticks have desensitized me to pain or maybe I was just too excited to be getting the tattoo but it wasn’t bad at all!

As for the rest of the bucket list.. I’m working on it and while my bucket list isn’t all that long, my fuckit list grows daily.

Check out the chemo curls!  Still not long enough in the front to cut and style, but it’s getting there!

I went with the forget-me-nots. The skin looks angry and red, but that didn’t last long at all and it looks great now! Didn’t he do a great job?

Bits n Pieces

I haven’t blogged for a bit. Life is pretty much back to normal. We have had a few household projects, the main one being redoing my office. I should say transforming my former junk room into a workable office space. It was one of these rooms that anything I didn’t know what to do with would get dumped in.  I had one small bookcase groaning under piles of books and more piles in every corner.  This summer when we redid the bathroom we sacrificed the office closet and that left us with some extra wall space, which is now sporting new bookshelves. I spent all weekend sorting, dusting (good Lord where does it all come from?) and re shelving books by author and genre. I made room for some of my sister’s books as well (she got two whole shelves!) and even parted with a small stack of my own (baby steps… I have a hard time letting go of books). Found homes for all the assorted “stuff” and organized my workspace.  I now have a combination library/office and the best part is I actually had the energy to work for two days straight instead of a few hours at a time and then having to recuperate on the couch.  At my last oncology visit I was told the chemo was all out of my system and I’m finally starting to feel like that is true.  Just a little post chemo weirdness though.. my eyebrows fell out again.. not all of them, but they became noticeably thinner and now have returned. My eyelashes completely fell out twice since returning.  I wasn’t aware that could happen but a little googling tells me it’s not that unusual and it will likely happen a few more times.  My fingernails never peeled or got terribly discolored though  that is a pretty common side effect of the chemo I was on. I kept them short and with layers of polish to keep them strong. Now, however, I have white lines in all of them and one thumb nail looks bruised.  All of the nails are peeling but from underneath. As long as I keep them polished they look fine.

I just realized tomorrow is the anniversary of when I discovered the lump that got me into this mess.  Maybe I’ll bake a cake. Or have a drink to celebrate.  Actually I probably should celebrate the fact that I found it.  Or not.  Most likely, not.  My doctors haven’t use the words “cured”,  “cancer free” or “NED” (no evidence of disease). I’m not sure when or if I will ever hear those words before the 5 year mark (countdown started after I finished treatment and began Tamoxifen.. so five years from September, 2012).  I have my first post diagnosis mammogram scheduled for November 12. Maybe I can get a little Ned out of them then.  I am prepared to be told there are changes from last year. I should hope so considering I’ve had surgery and radiation since then. Unfortunately that won’t make it any less scary to hear, I’m afraid.  And if the radiologist utters those words, regardless of what the changes are my doctors are obligated to follow up with more tests and then I get to wait on results again. I’m starting to get that I won’t feel free of this for many, many years, if ever.

I am flying for the first time since surgery this upcoming weekend. In preparation I visited the Lymphadema Clinic and was fitted for a sleeve and glove.  My doctors never said much about the need for this but I requested a referral. I was sent to P.T. where I was told compressing the arm if I’m not already having trouble would cause more harm than good (makes sense). Since I had heard that women who previously had no problems did when flying I asked if I could have a sleeve just to bring along as insurance and promised I wouldn’t wear it unless I needed to.  The physical therapist agreed and set me up with the Clinic.  At the Clinic I was told I HAD to wear the sleeve when flying because once I had problems they wouldn’t go away.  She then proceeded to explain all about lymphadema.  Who needs that!?   I have had no problems at all, but I only had one lymph node removed and I’ve been pretty diligent about exercising the arm and following as many precautions as I can.

 
In other news, I’ve finally narrowed down my tattoo to 3 choices.  As of this weekend it was 4 but I decided against f*ck cancer in a fancy script.  As I’m going to be a grandmother, that would be unseemly.   I know I’m a bit off schedule having insisted I would get one before I turned 50, but I couldn’t commit.   I’ll be in Austin next week. Where better?

These are the 3 top contenders.

The forget me nots in honor of my sister.

This means Survivor (too cliché?)

Care to vote?

Speaking of voting… robocalls are the devil.  We have one registered Republican, two Democrats and an Independent at this address and we all voted early since we will be away on November 6. These calls are driving me batshit crazy!

Just had to get that out.

Searching for love in all the wrong places?

It’s not often I blog twice in one day but this was too good to pass up. I was looking at my blog stats and clicked on search engine terms and on 10/17/12 someone found my blog searching with “strip me to the waist and use a whip on my back”.   First.. eww really?  Second.. bwaHAHAHA.. can you imagine their disappointment?  I was hoping to find more but the rest were pretty legit searches for blogs dealing with breast cancer, chemo and all the rest.  Oh except someone searched “using brouhaha in a sentence”. Is it weird that it makes me a little proud that my blog came up in that search?   I wish someone would search shenanigans now.

I wonder who else isn’t reading my blog

I already know which of my offspring doesn’t and have stored that information along with my Christmas shopping list and will revision. I know my doctors don’t because none have dropped me from their practice and/or apologized for prompting me to complain in what was going to be a positive blog about journeying through breast cancer.   My husband would probably read it more often if I added some obscure music facts and/or video.  Yesterday I found out someone else hasn’t been keeping up with me. Paula Young Wigs. I got an email asking why I hadn’t made a purchase in a while and offering me incentive to come back.  I immediately started to fire off a reply that I no longer needed a wig because my hair had made a triumphant return!  Luckily before I hit send I realized the people at Paula Young not only don’t care why I needed a wig to begin with, but would be even less interested in why I don’t.  Then I started wigging out (see what I did there?) about the so called quality of these wigs if they expected me to have replaced them already.   I mean, I had one freebie from the ACS and bought two myself so I would have some variety. How many wigs does the average wig wearer own and how often do they need replacement?  If I sold wigs I would sell them in days of the week packs like the panties we used to get as kids.  I’m telling ya, nothing could screw up your day more than wearing Thursday’s underwear on Monday.  Maybe that’s not such a good idea after all.  Women who are wearing wigs because they’ve lost their hair to chemo or other medical conditions have enough stress.

Back to the panties for a second.. I always figured they were a good idea for kids.. reminds them to change every day.  Now I see they make them for adults too and I’m entertaining myself with possible reasons why.  If my underwear say Monday I am supposed to be at the office….

Oh! They also have them for men. Now that’s probably a good idea.

Grit and Grace


Last night we saw the Glen Campbell Farewell Tour at the beautiful Merrill Auditorium in Portland, Maine.   The show was opened by two of his children who are part of a trio calling themselves Victoria Ghost.  The three of them, along with another son (the drummer) are also part of his band.  Amazing talented offspring.   If you were not aware that Glen was suffering from Alzheimer’s you might think he had had a little too much to drink. It made me sad thinking about how many times he may have humiliated himself and his family before the diagnosis, how many fans may have turned away, at least temporarily. With the help of teleprompters he remembered most of his lyrics. When he got stuck the audience would sing along or he would turn to one of his children.  He mentioned he was in Portland, Maine at the beginning but then kept giving shout outs to Portland, Oregon.  To be fair, I’ve seen other performers make mistakes like that, simple slips of the tongue that can be expected when you wake up in a different city every day.   I have to admit, before I saw him,  my cynical side was wondering exactly who this tour was for. If he was so far gone into his disease, how could it be for him? Would he even remember?  Were his handlers just trying to make a few more bucks off this legend while they could?  Seeing how his family cared for him on stage and how genuinely happy he was to be there dispelled all of that.  His kids and the rest of the band handled his gaffes with humor and grace. They gently brought him back to the moment.  He joked around about his memory, he teased his daughter and was wife who was off stage.  He just beamed with pride at all of them.   He sang all of the favorites; Galveston, Rhinestone Cowboy, By the Time I Get to Phoenix, Wichita Lineman, Gentle on my Mind and some I hadn’t heard in years like Where’s the Playground, Suzie?.   Two that were really powerful were True Grit (he claims he made John Wayne look so good he won him the Oscar!) and It’s Your Amazing Grace.

True Grit

One day, little girl, the sadness will leave your face
As soon as you’ve won the fight to get justice done
Someday little girl you’ll wonder what life’s about
But other’s have known few battles are won alone
So, you’ll look around to find
Someone who’s kind, someone who is fearless like you
The pain of it will ease a bit When you find a man with true grit

One day you will rise and you won’t believe your eyes
You’ll wake up and see, A world that is fine and free
Though summer seems far away
You will find the sun one day

It’s Your Amazing Grace

Everything I have in this world
I give it to you
Everything I see in this world
I see it through you, oh yes I do

You’re all that’s in my heart
You’re all that’s in my head

You know I believe this
That your amazing grace
It’s your amazing grace
Yes it is

I hold my head in my hands and I cry
When I think of you
Amazing grace
Keeps us together

You’re all that’s in my heart
You’re all that’s in my head

You know I believe this
That your amazing grace
It’s your amazing grace
Yes it is

I hold my head in my hands and I cry
When I think of you
Amazing grace
Keeps us together

When I started this blog, the first thing I did was seek out blogs of other women going through breast cancer. There were many. And then I found blogs of caregivers, men with cancer, mothers blogging about their children with cancer, women with cancers that are largely ignored while they are constantly  bombarded with breast cancer awareness.  I cannot start my day until I check in and read what is happening in their lives, how they are doing with treatment or how life is beyond treatment.  They run the gamut from heart wrenching, funny, inspirational,  uplifting, sarcastic and cynical.  One thing they all have in common is true grit and grace and I’m so happy I’ve found them.