Did you think I was avoiding you?

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In the grocery store?  I was.  I have been doing okay with most things.  Taking care of the usual necessary arrangements. Switching accounts and bills over to my own name.  Making arrangements to have all of the things done that I never had to worry about before.  I can have lunch with friends and talk about what happened. No problem.  Lately, though, if I see someone I know in a store I want to hide. I try not to catch their eye.  I turn down an aisle whether I need anything in it or not.  There are two kinds of people I see at the grocery store.   The ones I haven’t seen since the funeral and the ones I haven’t seen or heard from at all. As when my sister died, this is summer vacation. People are away. I really don’t want to be explaining what happened in front of the frozen peas or breaking down in the wine section (that just looks bad on so many levels). So if I give you a small wave and then turn away, please don’t be offended. And please don’t go out of your way to catch up with me in Dairy. Neither one of us will leave there feeling very good.  Instead of socializing I walk through the store like a ghost, picking up this and that, putting most of it back.  I buy tons of vegetables and fresh fruit and days later throw most of them away. I pick up packages of snack foods he liked to take to work and then remember that I just cleared all that out of the house and it all goes back. Cereal?  I don’t eat it, yet there are a 1/2 dozen boxes in my cupboard at the moment.

Yesterday was the one month mark.  We (the girls and I and my mother) went out for lunch and a movie.  We had a nice time. The movie was good. Exciting even.  I had a lump in my throat through most of it.  He would have liked it. He might have even stayed awake for the whole thing.  I don’t know why it made me sad.  I didn’t even particularly like going to the movies with him.  Because he always crowded me .. you know the type, taking up all the arm space on both sides.. and then would fall asleep.. only to wake up at various points during the movie wanting to know what happened.  He did the same thing when we watched movies at home. We had this routine.. me:  “are you up for a movie?  can you stay awake?”  him:  “sure”.. me:  “well, I know you’re tired and I don’t mind waiting until the weekend” him:  “just put it on”  him (5 minutes later): snoring.  I would spend the first half of the movie nudging him and the 2nd half hoping he wouldn’t wake up and start asking what happened. And after the movie ended he would get his second wind and spend hours on Facebook posting obscure music videos.  Nevertheless, we had a fairly long list of shows that we watched together, usually a full season at a time through Netflix. I guess all couples have their thing.. marathons of Sons of Anarchy, Breaking Bad, Shameless, Boardwalk Empire.. was ours. Interestingly, he could stay awake though all of those, but if I put on Weeds (at his request) he would sleep through most of it.

I can talk about how he died.  I can talk about what to do with his things, should I sell this? donate that? save it for the kids?  Those conversations feel normal. Doing groceries, making dinner, choosing what to watch on TV..those are the things that can have me reaching for an Ativan.   He loved to eat and I loved to cook.  We had an unwritten rule as a family, once the kids were old enough.. everyone pretty much fended for themselves for breakfast and lunch, but dinner was eaten at the table as a family every night.  Even the grown up kids were expected to be there if they were living here or visiting.  And we would hold dinner until they showed up.  We didn’t eat in front of the TV.  Over the past few years, if he was watching a game or we were just relaxing I would sometimes say.. “do you just want to eat in the living room?” .. it became a habit.. maybe once a week, but the majority of the time we still ate dinner as a family at the table.. even if it was just us two.  The table now holds a small stack of magazines (I guess I should cancel those subscriptions) that I have no interest in but can’t throw away, my ironing board and iron, a vegetable steamer and assorted other flotsam and jetsam of my life at the moment.

When my sister passed away we would talk about what the loss meant to each one of us, but the one I could hardly talk about without breaking down was her live in boyfriend.  She died in their bed in the home they had made together.  I couldn’t stand the thought of him being there alone, returning home to the emptiness. He had lived in the house alone before he met her but she had definitely made her mark on it.  I could not imagine what he was going through. It felt so much worse than what the rest of us were.  And now.. less than a year later I am in the same exact position (Dear Irony, I am no longer your biggest fan).  But strangely, I feel more anxious when I am away from home than when I’m here.  I do force myself to leave every day for one errand or another.  Baby steps. One foot in front of the other. Apparently that’s how you move forward.

A friend asked me the other day if I was mad at God.  I said I didn’t dare be mad at Him, I would be afraid of what He had in store for me next. We both laughed. I wasn’t kidding.

Stolen from Facebook

Stolen from Facebook

Navigating a new reality

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I’ve been pretty silent on the blogosphere. I’ve reblogged a few gems from some of the smart ladies that I follow, but otherwise have not had a lot to say. Mainly because life was becoming blissfully normal and really, who wants to read about the day to day musings of a 50 year old woman?  Nothing to see here folks.   I had planned to blog on the one year anniversary of my sister’s death.  That is coming up  on July 10.  Actually I planned to reblog the post I made about 10 days after she passed.  It’s not like anything has changed in that regard. She is still gone and we still miss her.   I was contemplating an update when I see my oncologist in July.  Truthfully I don’t expect anything new to come from that visit so unless something horrifying or hilarious happened on the way to the center it would be a pretty boring entry.

What I never in my wildest imaginings expected to be blogging about is the unexpected death of my husband.  On 4/29/13 we welcomed his new grandson in Texas.  On 6/1/13 we celebrated our 28th wedding anniversary with a trip to the coast that included eating lobster and looking for “treasure” in flea markets and antique shops. I looked for things to sell in my ebay business. He looked for vinyl and other collectibles that he could display in his “man cave”.  On 6/5/13 I spent the day setting up a charity lawn sale and when we both arrived home at the same time I told him I was too tired to cook and asked him to pick up sandwiches.  He did and we had a quiet evening.  He called a close friend and talked for a time, then called his son.  About an hour and a half earlier than he normally went to bed, he announced he was “freezing” and was visibly shivering.  I felt his forehead.. no fever. He was not sweating.  He had no other symptoms.  We both went to bed and slept normally. The next morning we were planning to visit our daughter in law before she flew home (she’d been here for a funeral) so he had the day off. We both slept a little later than normal.  When I got up he was in his recliner under two blankets. I asked he if was still cold and he said no, just achy and really tired.  While I made coffee he got the paper.  He didn’t touch his coffee or the paper and at one point just got up and went back to the bedroom. I asked if he’d gone back to bed and he said “for just a bit”.  I checked once, he was on his side facing the wall.  Fifteen minutes later I heard what I thought was loud snoring and went in. He was now flat on his back. I could not rouse him. I could not move him.  He appeared to be choking so I called 911.  While on the phone, he stopped breathing.  He was gone. Just like that. The EMTs were there in minutes and worked for over 45 minutes.  On 6/6/13 @ 8:26 a.m. my life changed forever.

Within hours my house was full of family.  My kids stayed with me for  more than 2 weeks (leaving in stages).   I had some wonderful quality time with the new baby.  I hated to see them all go, but my new reality involves living alone and doing for myself. I would love to hide under the covers or sit back helplessly and let others do for me, but that just prolongs the inevitable.

On the practical side there are decisions to be made, bills to pay, I had to buy health insurance for the first time in my adult life as we were always covered under his work plan (thank God I’m through with the expensive part of cancer treatment). I’m looking for work because even though my small business is making money, working alone is very isolating.

I guess I do have plenty to say after all. Huh, who knew?  Those of you who followed my journey through breast cancer are invited to follow my new journey through early widowhood.  I promise it won’t be all doom and gloom.  As is typical in our family there have been some hilarious moments that have you laughing/crying at the same time.

Remind me to tell  you about the financial institution that had me convinced someone had stolen my husband’s identity, had named names and was insisting I file a police report.  Only to find out it was their mistake after all (which I had been telling them for 2 days).  That’s a long story for another day.

They say God doesn’t give you more than you can handle.  He can stop any time now. I’m not the bad ass He makes me out to be.

In spite of it all, I remain mainelyhopeful.

Was Angelina Jolie Being Honest About Her Mastectomy?

A little dose of reality.

Trina Schilling's avatarTales of a 3 Time Breast Cancer Warrior

Was Angelina Jolie Honest about Her Mastectomy?Every time I hear of a woman being diagnosed with breast cancer or testing positive for the BRCA gene, my heart sinks. I close my eyes and take in a deep breath and hold them in my heart, silently whispering the phrase Namaste (the light in me acknowledges the light in you). I feel all the way to the core of my soul what they are going through or what they are about to go through.

When I woke this morning, I along with the rest of the world heard of Angelina Jolie’s wonderfully easy and glamorous experience with a nipple sparing elective double mastectomy. According to her article in the New York Times, she was back to normal in a few days. Her children have only witnessed tiny scars on her perfectly reconstructed breasts and she wants everyone to know how easy the whole thing was for her. And…

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Happy Easter!

Scorchy asks what now? How do you deal with the lull in treatment, survivorship…I was stage 2, grade 3 with lymph node involvement. I did the full gamut of treatment, surgery, chemo, radiation and now Tamoxifen. While I was undergoing “active” treatment (for some reason I don’t see Tamoxifen as active.. maybe proactive?) I felt empowered and very positive. For several months after my active treatment ended I felt anxiety that it would come back. I’m finally (sort of) past that but the only way I can finally move on is to stop identifying myself as a breast cancer patient or even survivor. In my mind I am someone who had cancer and now I don’t. That is always subject to change, but for now it works.

Scorchy's avatarThe Sarcastic Boob

Call me crazy, but ever since I got the good news that my lung lesions and all of the lymph nodes in the chest and right axilla resolved I have been a little lost.  Weird, right?

The first six months of my diagnosis was a crisis flash point.  I was thrown into doctors offices, presented with tests, medical interpretations, treatment options.  It took over my life.  I made a point of telling all of my friends because I thought it would help me to accept things and move forward.  It did, but then I didn’t anticipate managing that information network.  Then there were more physicians, more options, and the crisis of severe pain from that Tamoxifen induced tumor flare.  More drama as it slowly pushed me away from my work and the consequences of having to admit my limitations and hand important work over to others.  At the close of…

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Six month stay of elocution.

How does one end a blog? Do you just stop blogging or make some formal announcement?  I started this blog as a way to wrap my head around my diagnosis/treatment (a sort of self -therapy if you will) as well as to keep friends and family in the know without endless facebook updates. I would post a link to FB and those that wanted to could be informed.  What I didn’t expect to happen was finding a whole cyber community of other cancer patients/survivors/caregivers and genuinely wanting to keep up with them.  I never expected anyone outside my circle of family and friends to find, much less follow this blog.  That was kind of cool 🙂  I could just shift focus and blog about other things, but somehow now that I am done active treatment that just seems self-indulgent. At least on a blog that was specifically started to talk about breast cancer.  

So one final update.. I saw the oncologist yesterday and was given a clean bill of health. My tether has been lengthened to 6 months before my next check and the next time I have anything to report!

I’m going to continue to follow and comment on the blogs of the amazing folks I have met here in the blogosphere and who knows? I may decide I have something to blog about down the road but for now.. thanks for following along and all the support. 

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2012 in review

The WordPress.com stats helper monkeys prepared a 2012 annual report for this blog.

Here’s an excerpt:

600 people reached the top of Mt. Everest in 2012. This blog got about 11,000 views in 2012. If every person who reached the top of Mt. Everest viewed this blog, it would have taken 18 years to get that many views.

Click here to see the complete report.

Happy merry whatever you celebrate.

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I get a chuckle out of people that wish Merry Christmas defiantly like a big FU with your holiday cheer. The imaginary “war on Christmas” is silly. For instance, how can a business possibly know what their customers believe/celebrate? It makes good sense to be all inclusive. My wishes for all of you to have a safe, healthy and happy holiday season are sincere and while I won’t go out of my way to offend, I also won’t get too hung up on whether I am giving the “proper” greeting. Likewise, if you extend good wishes to me, I won’t get hung up on your choice of words, but will appreciate the sentiment behind them. I guess if your biggest gripe is someone wishing you Happy Holidays instead of Merry Christmas when babies are being gunned down in cold blood, people are dying from preventable diseases and folks are homeless and hungry, you are pretty blessed. Mazel Tov.

I had an anniversary of sorts yesterday. One year of blogging. I know this because Word Press sent me a notification. I decided to wait until today to mention it in case the Mayans were right and no one would be alive to read it. I took a quick glance through my oldest posts. I started out so earnest and hopeful but it didn’t take long for the f-bombs to make an appearance. I’m sure certain relatives especially enjoyed that. Who would complain? I had cancer.

I’ve sat down to blog just about every day and instead spent my time reading the blogs that I follow. My morning coffee with the girls. lovecoffee I haven’t had a lot to say. We are kind of just going through the motions this holiday season. Honestly, I’ll be glad to see the back side of 2012.

Hypochondria.. another fun side effect of cancer

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So, I’m done with cancer, but is cancer done with me?  On Thanksgiving night I pulled an abdominal muscle.  The pain went all the way through to my back. I knew I pulled a muscle. I felt it.   For the next 10 days I would feel the pain if I stretched or turned the wrong way. It would sometimes be worse in my upper abdomen, sometimes in my back or rib cage.  It would stop me in my tracks at times and a deep breath could bring me to tears. There’s not a whole lot that can be done for a pulled muscle so I never tried to get in to see my doctor.  I just suffered silently (ha!!).    Okay in the interest of full disclosure I may or may not have mentioned to my family that I should probably go to the ER, if I screamed suddenly they should just ignore me, and that I likely had a few cracked ribs, but I’d probably be okay.   They got off easy… I was treating myself to much more dire internal commentary.  What was that tearing feeling?  An abdominal aneurysm?  Wait.. is my liver enlarged?  If I do have a cracked rib.. why?  Bone mets?  Am I being paranoid?  Wouldn’t a brain lesion cause paranoia?  I also was sure I had gall bladder disease and maybe biliary colic (what’s biliary colic?.. I have no idea but it sounds impressive).

As of  today, I think I will probably pull through. I can only feel the pain if I force it.  I’m sure I’ll pull another muscle with all these crazy contortions I’m putting myself through to see if I can reproduce the pain proving it was indeed a pulled muscle versus needing immediate surgery for some kind of internal injury.

p.s.. hypochondria is a recognized medical condition.  So I’m only a little crazy.

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