My Journey To Being A Breast Cancer Survivor

I am 49 years old, married with 3 grown children, 2 semi-psychotic dogs and 2 lazy orange cats. On 10/30/11 I discovered a lump in my right breast and was diagnosed with Stage 2 invasive ductal carcinoma. Breast Cancer.  I have had surgery and am about to begin chemotherapy, followed by radiation and estrogen suppression. I try to find humor in most situations and there have been some cringe worthy and down right funny moments over the past 2 months. I want to share my journey to being a cancer survivor.

I am going to catch up to today, 12/20/11 … one week from my first chemo treatment.

On Sunday evening, 10/30/11  I discovered a lump in my right breast while showering. I didn’t mention it to my husband, but posted on a message board that I frequent that I was “freaking out” a little.  My friends all assured me it was probably nothing, maybe even a “fatty” tumor but encouraged me to see my doctor first thing Monday morning.  Over coffee I casually mentioned that I was going to see my general practitioner because I had found a lump. I was sure it was just a cyst at this point. It literally appeared over night.  I was seen that afternoon and she agreed with my assessment. It looked, felt and acted like a cyst.  Just to be sure I was scheduled for an ultrasound and mammogram (my last one was 12/09 and I had been told every 2 years was sufficient).  The techs asked why I was here and I said to verify I had a cyst. They said nothing to dissuade me from that.  The radiologist read the ultrasound after I was told to dress and sent the tech in for more views, this time of the axillary area. She asked again when my last mammogram was and chided me for waiting.  I went home and waited.  That afternoon my doctor called me and said it was not a cyst after all, but a firm mass and I was scheduled to see a surgeon the next morning.

My husband and I met with the surgeon and after an examination he biopsied the lump.  He casually mentioned if he didn’t get enough of a sample, the next step would be an excisional biopsy in the OR.  Fine by me. I wanted it out.   He said I would have results the next afternoon and finally did call late in the day to let me know there were no results, but if I did need an additional biopsy then it would be done with ultrasound guidance.  Monday I got the call that another biopsy was needed. The sample was “suspicious” but insufficient. I knew then that it was cancer, but had to wait for the official word. The secretary called with an appointment for that Thursday. I nearly begged to be seen sooner, even if that meant the OR. She talked to the doctor and called back to say no, he would not take me to the OR without this biopsy in case it was “something” and they needed to do more.  The words “something” and “anything” were used a lot. I wanted to point out that I was well aware what we were looking for and it was okay to use the word cancer.   I resisted the urge.  Knowing how anxious I was the secretary offered to see if she could get me in sooner at another facility.  I got a call that afternoon from the cancer center and was scheduled the next day.   The breast care coordinator met me at the hospital and held my hand through the very painful biopsy. We both pretended we didn’t know it was cancer.  This was Tuesday. Thursday afternoon I got the call.  I was relieved to hear the words and anxious to move forward with treatment.

I met with my surgeon, husband and mother at the cancer center the next morning along with another breast care coordinator and was given a lot of information to digest. Too much really.   My mother and husband were supposed to be my  extra ears, but I think I actually heard and grasped more than they did. I had already come to terms with having cancer. Or so I thought.  As it turns out this is a work in progress.

Throughout this process I had told my husband, parents and sister, but not our children and I struggled over that.  Our son is living in another state and traveling for work. Our daughters are in Grad School and College.  I didn’t want them to have to deal with this until we knew exactly what we were dealing with. Calling them was very hard and I broke down for the first time. Our son wanted to come home and started looking for flights.  Our oldest daughter  headed home from Boston that night. The youngest came the next day.  Having them home was a nice distraction and while we did talk about the cancer, we didn’t dwell on it.  We went to dinner and a movie, laughed, and just hung out. At one point they said I was so upset when I called them “we thought one of the dogs had died”. So glad it was nothing that terrible.

Since my diagnosis I have met with Medical and Radiation Oncology to discuss options, have had an MRI that showed only the lump we were already aware of, have had surgery, oncology teaching, and something called a MUGA scan to see if my heart is healthy before beginning treatments.  The MRI results meant I could have a lumpectomy (or breast conservation surgery or partial mastectomy.. take your pick).  I had decided if mastectomy was needed I wanted both breasts taken, so this was good news and I was ready for some. I could have opted for radiation only after the surgery, but because the cancer is hormone receptive and because micro metastasis was found in the sentinel lymph node, I am going for broke. I will have chemo for 6+ months, followed by radiation and then Tamoxifen for 5 years.

I don’t know how I will feel with the chemo, I do know I will lose my hair and will likely be tired. Beyond that I am going to take each day as it comes. I’m as prepared mentally and physically as I can be.  I can cry over losing my hair or be grateful I got to keep my breasts. I choose gratitude.  I’ve bought wigs, hats and scarves and my on line friends sent me a box with hats and scarves from all over the country.  It came on a day when I really needed a smile.  I will refer to them as Daisies when I  mention them in this blog. They are the best group of friends I’ve never met, giving so much love and support it humbles me. I get emotional at strange times.. like while talking with a cousin at Walmart about the holidays (but to be honest Walmart always makes me want to cry). When meeting with the doctors I feel very focused and confident that I am getting the best advice and medical care I can.  I sometimes wonder if they think I am in denial because I don’t get emotional during those meetings.  It’s not something I can turn on and off.. I feel what I’m feeling and move on.   You would think this would be a tough time of year, but the holidays are busy and I have no time to dwell.  I’ve had one “bad” day when I had to meet with my surgeon, get my hair cut and see the dentist with plenty of time in between appointments but not enough to do anything productive. It was a long day. Getting my hair cut bothered me far more than I expected.  Discussing breast cancer with my dentist was just surreal, but dental care has to be attended to before starting chemo. When I finally got home I had a headache, a super short haircut and wanted to have a good cry.  I told my daughter and husband if one more person I barely know looks at me with tears in their eyes and hugs me I am having thorns surgically implanted.  I think I could probably do that when I have my port a cath removed.  We’ll have to see if it’s covered by Blue Cross.

My family and friends have been supportive and have (mostly unintentionally) provided me with a lot of laughs. I talk freely about my diagnosis and treatment because I don’t want my kids to be afraid of cancer. There is a family history on both sides and they need to see it is not a death sentence and when life hands you lemons you make lemonade.  Well that’s what I want them to do. I’m buying some vodka and drinking until the lemons are gone.

In October 2012, I will turn 50 and plan to be cancer free. I am getting a tattoo to celebrate.

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17 comments

  1. Marylea · December 20, 2011

    I have to tell you, you are remarkable and you just became my hero!

    Like

  2. stella · December 21, 2011

    And I will be following your journey, walking mostly beside you, but right behind you whenever you need a little back up. xoxo

    Like

  3. Susan · December 23, 2011

    Thank you for following my blog I will also be following yours as we take this journey together. God Bless!

    Like

  4. kymlucas · January 5, 2012

    I wish you the best of luck in your cancer journey. And thanks for subscribing to my blog. We are at different points in the same fight. Do you know what chemo drugs you’ll be getting?

    I found the steroids to be a real b—–! Kept me from sleeping. I hated that.

    Like

    • mainelyhopeful · January 5, 2012

      I’m on ACT, right now doing AC every 3 weeks X 4 and later will do Taxol weekly for 12 weeks. I slept great with Benadryl 🙂

      Like

  5. Cancer Warrior · January 13, 2012

    HI!
    Our stories are very similar. I finished my chemo on Dec. 7th. Losing your hair has its perks, so don’t fret about it.
    Cancer Warrior
    http://www.perksofcancer.com

    Like

  6. nygurl · January 19, 2012

    I wasnt thrilled about turning 50 for all the obvious reasons but in your case it will be a triumph and i have no doubt you;ll be cancer free!

    Like

  7. loopynutter · January 25, 2012

    Finally got around to reading your first blog, I feel like we are two peas in a pod and just know I’m with you on the journery and I hope reading each others blogs we can smile together.. Jane- UK x

    Like

  8. Donna Trussell · February 6, 2012

    When I finished treatment for ovarian cancer, my doctor insisted I keep my port for another year. That was a long 12 months. When they were done, my nurse said, “You know, some patients like to keep their ports even longer.” I replied, “Get this thing OUT of me!” That was 2003. Turned out to be a good call. 🙂

    Like

    • mainelyhopeful · February 6, 2012

      I see no benefit to keeping a foreign body embedded in your chest indefinitely!

      Like

  9. The Savvy Sister · February 21, 2012

    Where is your subscibe button???? Am I blind?

    Like

    • mainelyhopeful · February 24, 2012

      I just click on the “follow” button at the top of page. 🙂

      Like

  10. Lori · May 2, 2012

    Thank you for sharing your journey. I’ll be sending positive thoughts and prayers your way.

    Like

  11. insahmity · November 13, 2012

    I love your attitude — and that you always cry at Walmart.

    Like

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